Kimberly Williams-Paisley

Kimberly Williams-Paisley and Primary Progressive Aphasia

Kimberly Williams-Paisley was beaming at the altar, marrying the love of her life after playing a bride in the movies. She had pulled off the wedding of her dreams, surrounding herself with the people she loved, including her mother. She had no clue how life was going to change in the years after that wedding.

Welcome to the first post in our new book club selection: Kimberly Williams-Paisley’s book about her mother’s primary progressive aphasia called Where the Light Gets In.

First Moments

There may have been moments beforehand, and there were certainly moments after, but the first time primary progressive aphasia made its presence known to Kimberly Williams-Paisley was at her wedding.

Her mother was tasked with reading a poem, and she stumbled over the title and words as if there were typos on the page and she was frustrated to get an imperfect copy on such an important occasion.

This is how the book opens, marking the before and after. The before where her mother was an adventurous, no-nonsense sort who nudged her children to explore the world and everything it contains. And the after where her mother was unable to find the words to understand herself or that world around her.

Primary Progressive Aphasia

It’s emotional to mark the moment where everything changed. Of course, with primary progressive aphasia, it wasn’t the abrupt type of change that occurs with a stroke or traumatic brain injury. It was a slow loss that required the family to keep coming to terms with the situation again and again.

For the next weeks, we’ll be exploring this story of primary progressive aphasia, loss, and love. We hope you’ll grab the book from your library or bookstore, and join in the discussion. We want to hear your primary progressive aphasia story, too.

Image by dodge challenger1 – Kimberly Williams-Paisley, CC BY 2.0, https://commons.wikimedia.org/w/index.php?curid=4184834

Comments

6 Comments

  • Leesa braun
    July 10, 2018 at 11:20 am

    I’m looking forward to reading this! It’s a difficult journey- my Mom was diagnosed far too late in both age and stage. We looked back and saw the first signs 10 years earlier but just thought it was getting old.

  • Cheryl Allen
    July 10, 2018 at 12:29 pm

    I highly recommend this book. I have read it twice as I make this same journey with my mother

  • Dave Freylack
    July 10, 2018 at 4:06 pm

    I’m Male, 2 yr PPA, 63 year old. Stem Cells in Cancun, Mexico, last month, wait for 5 months. Speaking terrible, write bad!

  • Catherine McCarthy
    July 11, 2018 at 5:34 am

    hi
    i’m Catherine. i have primarey Progresseve aphasia. I never said to oneerner I feel alone . I can talk but badlly. writing is a nightmare.
    read is bad as well. i’ll live to someone who has it .

    Catherine.

  • Juanita Lawing
    July 11, 2018 at 7:48 pm

    It was this beautiful lady that introduced me to what has become a nightmare. But without her telling her mother’s story I may be in much worse condition. I will ever be thankful to Kim. She is beautiful inside and out. Thanks to her so much.

  • Norma kreisel
    July 12, 2018 at 12:19 am

    I have P.P.A. for two years now am interested in stem cell if anyone has more info on it. I know this sickness is lonely I have started a support group called primary progressive aphasia people only cause I wanted people like me to talk to and after a few months of me talking and bearly anyone answering, and I have 21 people in the group, I realized it’s because it’s so hard for most of us to communicate even though we want to.

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