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Group Aphasia Threads: What People with Aphasia Want You to Know (Part III)

While the Aphasia Threads project brings together the stories of people with aphasia, caregivers, and professionals, a group of people with aphasia decided to tackle the questions collectively.

Neuro Rehab Network in Clarksville, Maryland tackled the questions together as a group. These questions were answered by the Aphasia Book Club, which is a group led by Julie Rowlett, a speech-language pathologist with Neuro Rehab Network.

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We Each Have an Aphasia Story

  • I had two strokes.
  • I had a stroke.
  • I have aphasia that is progressive – PPA.
  • I have a neurological condition.

Aphasia Changes Your Life

  • My family is concerned about me.
  • Communication is difficult.
  • I get tired more easily.
  • Friendships change.

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But There Are Things That Help

  • Writing key words helps me to communicate more clearly.
  • I never thought I’d be able to read again. However, our Aphasia Book Club provides me with two critical tools that allow me to be successful. Having both the visual and auditory formats helps me to track the words at my pace, so I can comprehend the content.
  • Groups help me connect with others with aphasia.

And Things You Learn Along the Way

  • Keep trying; never give up!
  • Go to therapy.
  • Be patient with yourself.

Caregivers and Professionals Need to Know This About Aphasia

  • Joining with others with aphasia is like an “Aphasia Family.”
  • We are the same but different.
  • Talk to me. It may take more time, but I will get it out.
  • It helps to know other people with aphasia.

Comments

One Comment

  • Ginny L Wilson
    December 29, 2019 at 3:59 pm

    I have a neurological condition called Primary Progressive Aphasia
    It is difficult for me to find the words to express my thoughts
    It does not affect my intellect
    Please be patient and give me time to speak
    Another thing that helps is speaking face to face with eye contact.
    You can also help by asking me to tell you more if you don’t understand.
    I am working with a speech therapist on communication strategies
    Thanks for your patience and understanding.

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