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Primary Progressive Aphasia

Information about Primary Progressive Aphasia (PPA)

Primary Progressive Aphasia is a rare neurological syndrome in which language 
capabilities become slowly and progressively impaired.
 

A brief publication defining Primary Progressive Aphasia.

Diagnosing PPA
A brief publication describing some of the symptoms of Primary Progressive Aphasia.

Managing PPA
A brief publication that describes a few approaches to treatment.

The Dr. Lawrence Albert Memorial Webinar Series on Primary Progressive Aphasia
(series is geared toward Professionals but may be viewed by all interested)
Webinar 1: The ABCs of PPA for SLPs
(Dr. Sandra Weintraub)
Click here for archived recording
Click here for PDF of PowerPoint Presentation

Webinar 2: Treatment for Persons with PPA
(Dr. Melanie Fried-Oken & Dr. Maya L Henry)
Click here for archived recording
Click here for PDF of PowerPoint Presentation

Webinar 3: Living with Primary Progressive Aphasia
(Darby Morhardt, MSW, LCSW & Dr. Jamie Reilly)
Click here for archived recording
Click here for PDF of PowerPoint Presentation (Dropbox Link)

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PPA in the News!

"When Words Fall Away"
Written by Mary Schmich. Chicago Tribune, March 20, 2011

PPA Blog/Support for Families
"Stealing of Words - Primary Progressive Aphasia."
Blog created by Andy Katsigiannis

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PPA Programs & Professionals

Mayo Clinic Primary Progressive Aphasia Treatment Program
Locations in Jacksonville, FL, Rochester, MN and Scottsdale/Phoeniz, AZ. Dedicated to the diagnosis and treatment of PPA. Brain Donations accepted only from Mayo Clinic Research participants.

 

Northwestern University Primary Progressive Aphasia Program
*Located in Chicago, IL. Dedicated to research, evaluation, diagnosis and treatment of PPA. Click here for information about Brain Donation.

*Contact:

Darby Morhardt, MSW, LCSW
Director, Education
Cognitive Neurology & Alzheimers Disease Center
Northwestern University Feinberg School of Medicine
320 E. Superior, #11-453B
Chicago, IL 60611
(312) 908-9432(312) 908-9432 (ph)
(312) 908-8789 (fax)
d-morhardt@northwestern.edu

*PPA Support Group for Caregivers - meets the third Monday of every month from 6-7:30 pm. Located at Northwestern Memorial, Feinberg Pavillion, 251 E. Huron St, Chicago, IL. Contact: Darby Morhardt, MSW, LCSW (312) 908-9432(312) 908-9432

 

Triangle Aphasia Project @ WakeMed Rehab
*Located in Raleigh, NC. Has been working with Northwestern Univ and Mayo Clinic on PPA programs and research.

*Contact:

Maura English Silverman, M.S., CCC-SLP
Triangle Aphasia Project, Unlimited
191 High House Rd
Cary, NC 27511
(919) 650-3854(919) 650-3854
info@aphasiaproject.org
maura@aphasiaproject.org
www.aphasiaproject.org

 

Aphasia Research Project @ University of Arizona
*Located in Tucson, AZ. Research lab directed by Pelagie M Beeson, Ph.D., CCC-SLP. Works with individuals who have stroke/brain injury as well as those with Primary Progressive Aphasia.

*Contact:

Kindle Rising, M.S., CCC-SLP
Senior Research Specialist
Aphasia Research Project
University of Arizona
Dept of Speech, Language and Hearing Sciences
1131 E. 2nd St
Tucson, AZ 85721
(520) 621-9878(520) 621-9878
aphasia@email.arizona.edu

 

The Association for Frontotemporal Degeneration
*Located in Radnor, Pennsylvania. Promotes and funds research to find the cause and and cure for Frontotemporal Dementias. Click here for information about Brain Donation.

*Contact:

Susan Dickinson
Executive Director
The Association for Frontotemporal Degeneration
Radnor Station Building #2, Suite 320
290 King of Prussia Road
Radnor, PA 19087
(267) 514-7221(267) 514-7221
(866) 507-7222(866) 507-7222

Check out this video from The AFTD:

Frontotemporal Degeneration & Related Disorders Center
*Located in Philadelphia, Pennsylvania. Promotes research to find the cause and and cure for Frontotemporal Dementias. Click here for information about Brain Donation.

*Contact:

Lauren M. Massimo
Center for Frontotemporal Degeneration & Related Disorders
University of Pennsylvania
3 West Gates Bldg
3400 Spruce St
Philadelphia, PA 19014-4283
(215) 349-5725(215) 349-5725
Lauren.Massimo@uphs.upenn.edu

 

UCSF Memory & Aging Center
*Located in San Francisco, CA. Provides care for individuals with cognitive problems, conducts research on the causes and cures for degenerative brain diseases, and educates health professionals, patients and their families. Click here for information on Brain Donation.

*Contact:

Maya L. Henry Ph.D, CCC-SLP
UCSF Department of Neurology, Memory and Aging Center
350 Parnassus Ave, Suite 905
San Francisco, CA 94143
(415) 476-2912(415) 476-2912
mhenry@memory.ucsf.edu

 

PPA Research @ Adler Aphasia Center
Located in Maywood, NJ. Research department directed by Audrey Holland, Ph.D., CCC-SLP. Group programming and research activities for individuals with aphasia resulting from stroke/brain injury and Primary Progressive Aphasia. PPA Caregiver support group held quarterly.

Contact:
Gretchen Szabo
Research Speech-Language Pathologist
Adler Aphasia Center
60 West Hunter Avenue
Maywood, NJ 07607
201-368-8585201-368-8585
gszabo@adleraphasiacenter.org

 

Additional Resources:

Joanne Gleason (family member of person with PPA)
26 Rachel Rd
Pleasant Valley, NY 12569
(845) 635-3786(845) 635-3786
jgleason330@gmail.com