The NAA thanks Jeff Penzien and his family for making
it possible to provide this information about Primary
Progressive Aphasia. Jeff ran the Detroit Marathon in
October 2004 in honor of his father, Herb Penzien, who
has Primary Progressive Aphasia, and held a spaghetti
dinner the night of the marathon to educate the 500 or
so guests about aphasia and to raise money for the NAA.
Understanding
Primary Progressive Aphasia
Diagnosing
Primary Progressive Aphasia
Alan Mandell, NAA Newsletter
Volume 14, Number 2, Fall 2002.
Managing
Primary Progressive Aphasia
Joseph R. Duffy, Ph.D., BC-NCD,
Rochester, MN.
Mayo Clinic Primary Progressive Aphasia Treatment Program
Locations in Jacksonville, FL, Rochester, MN and Scottsdale/Phoeniz, AZ. Dedicated to the diagnosis and treatment of PPA.
Northwestern University Primary Progressive Aphasia Program
*Located in Chicago, IL. Dedicated to research, evaluation, diagnosis and treatment of PPA
*Contact:
Darby Morhardt, MSW, LCSW
Director, Education
Cognitive Neurology & Alzheimers Disease Center
Northwestern University Feinberg School of Medicine
320 E. Superior, #11-453B
Chicago, IL 60611
(312) 908-9432 (ph)
(312) 908-8789 (fax)
d-morhardt@northwestern.edu
*PPA Support Group for Caregivers - meets the third Monday of every month from 6-7:30 pm. Located at Northwestern Memorial, Feinberg Pavillion, 251 E. Huron St, Chicago, IL. Contact: Darby Morhardt, MSW, LCSW (312) 908-9432
Triangle Aphasia Project @ WakeMed Rehab
*Located in Raleigh, NC. Has been working with Northwestern Univ and Mayo Clinic on PPA programs and research.
*Contact:
Maura English Silverman, M.S., CCC-SLP
Clinical Specialist/Aphasia
TAP at WakeMed Rehab
1208 Cerny St
Raleigh, NC 27617
(919) 350-0981
msilverman@wakemed.org
www.aphasiaproject.org
Aphasia Research Project @ University of Arizona
*Located in Tucson, AZ. Research lab directed by Pelagie M Beeson, Ph.D., CCC-SLP. Works with individuals who have stroke/brain injury as well as those with Primary Progressive Aphasia.
*Contact:
Kindle Rising, M.S., CCC-SLP
Senior Research Specialist
Aphasia Research Project
University of Arizona
Dept of Speech, Language and Hearing Sciences
1131 E. 2nd St
Tucson, AZ 85721
(520) 621-9878
aphasia@email.arizona.edu
The Association for Frontotemporal Dementias
*Located in Philadelphia, Pennsylvania. Promotes and funds research to find the cause and and cure for Frontotemporal Dementias.
*Contact:
Susan Dickinson
Executive Director
The Association for Frontotemporal Dementias
1616 Walnut St, Suite 1100
Philadelphia, PA 19103
(215) 693-6228
(267) 514-7221
(866) 507-7222
sdickinson@ftd-picks.org
Frontotemporal Degeneration & Related Disorders Center
*Located in Philadelphia, Pennsylvania. Promotes research to find the cause and and cure for Frontotemporal Dementias.
*Contact:
Lauren M. Massimo
Center for Frontotemporal Degeneration & Related Disorders
University of Pennsylvania
3 West Gates Bldg
3400 Spruce St
Philadelphia, PA 19014-4283
(215) 349-5725
Lauren.Massimo@uphs.upenn.edu
Additional Resource:
Joanne Gleason (family member of person with PPA)
26 Rachel Rd
Pleasant Valley, NY 12569
(845) 635-3786
jgleason330@gmail.com
Progressive
Aphasia Syndrome to Prion Gene
NIH-Funded Study Links (offsite
link)
My Dad, The Hero
Personal account written by Joanne Gleason, daughter of father with PPA
My Spouse has Aphasia PPA: How we cope
Personal account written by Charles Walker, spouse of wife with PPA
When the Words Won't Come
Personal Account written by Mary Beth Riedner, spouse of husband with PPA
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