The NAA thanks Jeff Penzien and his family for making
it possible to provide this information about Primary
Progressive Aphasia. Jeff ran the Detroit Marathon in
October 2004 in honor of his father, Herb Penzien, who
has Primary Progressive Aphasia, and held a spaghetti
dinner the night of the marathon to educate the 500 or
so guests about aphasia and to raise money for the NAA.
Understanding
Primary Progressive Aphasia
Diagnosing
Primary Progressive Aphasia
Alan Mandell, NAA Newsletter
Volume 14, Number 2, Fall 2002.
Managing
Primary Progressive Aphasia
Joseph R. Duffy, Ph.D., BC-NCD,
Rochester, MN.
PPA in the News!
Written by Mary Schmich. Chicago Tribune, March 20, 2011
PPA Blog/Support for Families
"Stealing of Words - Primary Progressive Aphasia."
Blog created by Andy Katsigiannis
Mayo Clinic Primary Progressive Aphasia Treatment Program
Locations in Jacksonville, FL, Rochester, MN and Scottsdale/Phoeniz, AZ. Dedicated to the diagnosis and treatment of PPA. Brain Donations accepted only from Mayo Clinic Research participants.
Northwestern University Primary Progressive Aphasia Program
*Located in Chicago, IL. Dedicated to research, evaluation, diagnosis and treatment of PPA. Click here for information about Brain Donation.
*Contact:
Darby Morhardt, MSW, LCSW
Director, Education
Cognitive Neurology & Alzheimers Disease Center
Northwestern University Feinberg School of Medicine
320 E. Superior, #11-453B
Chicago, IL 60611
(312) 908-9432 (ph)
(312) 908-8789 (fax)
d-morhardt@northwestern.edu
*PPA Support Group for Caregivers - meets the third Monday of every month from 6-7:30 pm. Located at Northwestern Memorial, Feinberg Pavillion, 251 E. Huron St, Chicago, IL. Contact: Darby Morhardt, MSW, LCSW (312) 908-9432
Triangle Aphasia Project
*Located in Apex, NC. Has been working with Northwestern Univ and Mayo Clinic on PPA programs and research.
*Contact:
Maura English Silverman, M.S., CCC-SLP
Triangle Aphasia Project
127 N Salem St, Ste A
Apex, NC 27502
(919) 800-8047
aphasia@nc.rr.com
www.aphasiaproject.org
Aphasia Research Project @ University of Arizona
*Located in Tucson, AZ. Research lab directed by Pelagie M Beeson, Ph.D., CCC-SLP. Works with individuals who have stroke/brain injury as well as those with Primary Progressive Aphasia.
*Contact:
Kindle Rising, M.S., CCC-SLP
Senior Research Specialist
Aphasia Research Project
University of Arizona
Dept of Speech, Language and Hearing Sciences
1131 E. 2nd St
Tucson, AZ 85721
(520) 621-9878
aphasia@email.arizona.edu
The Association for Frontotemporal Degeneration
*Located in Radnor, Pennsylvania. Promotes and funds research to find the cause and and cure for Frontotemporal Degeneration. Click here for information about Brain Donation.
*Contact:
Susan Dickinson
Executive Director
The Association for Frontotemporal Degeneration
Radnor Station Building #2, Suite 200
290 King of Prussia Road
Radnor, PA 19087
(215) 693-6228
(267) 514-7221
(866) 507-7222
sdickinson@theaftd.org
Frontotemporal Degeneration & Related Disorders Center
*Located in Philadelphia, Pennsylvania. Promotes research to find the cause and and cure for Frontotemporal Dementias. Click here for information about Brain Donation.
*Contact:
Lauren M. Massimo
Center for Frontotemporal Degeneration & Related Disorders
University of Pennsylvania
3 West Gates Bldg
3400 Spruce St
Philadelphia, PA 19014-4283
(215) 349-5725
Lauren.Massimo@uphs.upenn.edu
UCSF Memory & Aging Center
*Located in San Francisco, CA. Provides care for individuals with cognitive problems, conducts research on the causes and cures for degenerative brain diseases, and educates health professionals, patients and their families. Click here for information on Brain Donation.
*Contact:
Maya L. Henry Ph.D, CCC-SLP
UCSF Department of Neurology, Memory and Aging Center
350 Parnassus Ave, Suite 905
San Francisco, CA 94143
(415) 476-2912
mhenry@memory.ucsf.edu
PPA Research @ Adler Aphasia Center
Located in Maywood, NJ. Research department directed by Audrey Holland, Ph.D., CCC-SLP. Group programming and research activities for individuals with aphasia resulting from stroke/brain injury and Primary Progressive Aphasia. PPA Caregiver support group held quarterly.
Contact:
Gretchen Szabo
Research Speech-Language Pathologist
Adler Aphasia Center
60 West Hunter Avenue
Maywood, NJ 07607
201-368-8585
gszabo@adleraphasiacenter.org
Additional Resources:
Joanne Gleason (family member of person with PPA)
26 Rachel Rd
Pleasant Valley, NY 12569
(845) 635-3786
jgleason330@gmail.com
Progressive
Aphasia Syndrome to Prion Gene
NIH-Funded Study Links (offsite
link)
My Dad, The Hero
Personal account written by Joanne Gleason, daughter of father with PPA
My Spouse has Aphasia PPA: How we cope
Personal account written by Charles Walker, spouse of wife with PPA
When the Words Won't Come
Personal Account written by Mary Beth Riedner, spouse of husband with PPA
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